Kyla Miller Foundation

Joining in the fight to end pediatric brain cancer...
P.O. Box 712     Dillsburg, Pennsylvania  17019
(717) 259-9742     info@kylamillerfoundation.org 

          End of Life Issues
This is not the page that any parent wants to see or read.  Unfortunately, it is a reality for many parents that have a child with cancer.

The United States as a whole is sorely in need of support in the palliative care aspect of pediatrics.  Hospice should be a great experience during a very tragic time.  However, many hospice organizations just do not have the specialty services that are needed for pediatric patients.  Dealing with a dying child is far different from dealing with a dying adult.

Ask your child's medical team if they have a person on staff that specializes in pediatric palliative care.  Use this resource as much as possible to coordinate your child's hospice care.  You need someone that knows about end of life issues for children, specifically.

KMF would like to point you to Children's Hospice and Palliative Care Coalition.  Based in California, this organization specializes in pediatric palliative care issues and advocates in the state of California for families of children in palliative care.  Their nursing staff is also specialized in children's hospice versus adult hospice.
 

Types of Brain Tumors
Diagnosis
Treatment
Support During Treatment
Life After Treatment
Quality versus Quantity of Life
End of Life Issues
Resources (Links)
Open Clinical Trials
     

Kyla Miller Foundation is a Pennsylvania state registered non-profit organization joining in the fight to end pediatric brain cancer. KMF is named lovingly after
Kyla LeeAnne Miller, a loving and vibrant child who succumbed to glioblastoma multiforme just two days shy of her tenth birthday. 
Copyright 2008 - 2011 Kyla Miller Foundation.  All rights reserved.  This site hosted by Stamm Solutions.